Sometimes bad shit happens

Sorry, I’ve been slacking on the blog posts of late. You’re probably wondering what’s been going on! Well, in all honestly I can say not a lot. And its good!
And I apologise too for the title of this post. It is the only title I could think of where it put my point across well. If you didn’t realise it already then my language is occasionally fruity but it’s honest.

I did manage to finally go away. I took a break to Switzerland for a few days. It’s nice to finally have a plan that sticks!

Today is a pretty important day for me. It’s scan day. I’ll have my CT scan with contrast to see what’s left… Or worst case, if there’s more. I’m not really thinking about it to be honest. It’s like Pandora’s box if I flip that lid. I’ll get round to the worry and sleepless nights on the lead up to results day. There’s a word in the cancer community that I hear a fair bit.

Scanxiety.

I fucking hate that word.

The anxiety of a scan.

It can be a range of things. Anxiety of the scan itself, the preparation of it or just the results. If you’re going through this yourself you’re guaranteed to experience scanxiety at some point. You’re a bloody tough nut if you don’t!

For me, the scan, the needles, the waiting, it’s fine. It’s a process. I can quite easily shut my emotions off for this part and just go with it. There’s nothing more I can do so I just kick back and let the medical staff do their work. I’m just another number in their day, and that’s the sad part. How many people they see each day doing pretty much the same thing.

You know, if there’s one thing I’ve learnt from all this its how to get a good game face. And I don’t mean for the treatment itself or the cancer. Some days you do have to fake it to get by but I don’t mean that.

I’m different these days. Aside from the obvious why I’m different… I mean it in ordinary scenarios in life. And I find that fucking annoying.

But people don’t realise I’m different because I still act the same, unless I talk to them about it. It’s all about my game face. I act the same but inside my world is crumbling.

You’re probably thinking that these scenarios are extreme or that maybe I should avoid putting myself in these situations. That’s probably what I would have said before this because I wouldn’t have understood. But I can’t. Sometimes they just creep up on you like “ah ah ah! Don’t get too comfortable with life! I’m just lurking round the corner to screw your life up again!”

A lot of my internal freak outs are to do with family and death. I know… Morbid.

I’ve always been rational but now I’m thinking of situations where something bad is going to happen or if its a real internal meltdown someone’s going to die.

You’re probably worried about my mental health right now. Honestly it’s fine. I talk about this to my close ones. They know about my lockdowns. They probably don’t realise how often I have to do it but they can’t hold my hand all the time. As I said… It’s a process and something I have to deal with in my new life. I don’t need a therapist as much as you may disagree with me.

It just pisses me off that I’m now thinking of shit I’ve never had to think of before. I could probably resolve this a lot quicker by going and talking to my doctor but I don’t need another pill to pop. It’s intruding my life but it’s not stopping me from living it.

It’s crazy how your mind can fuck you up at times… I actually thought as I stepped on that plane to Switzerland: this plane is going to crash. Not: finally, I’m going on holiday! I’ve never been worried of crashing planes before. That pisses me off. It tarnishes all exciting experiences for me now. I hope one day to get to a comfortable place where disaster is not the first thing I think of.

I guess my worries are because I’ve had cancer doesn’t mean that I’m immune to other bad situations occurring. Bad things happen in life and there is shit I can do to stop it.

Fucking scanxiety… Yeah that’s not all I’ve got!

A few from Switzerland 🇨🇭✌💜

When rationality ups and leaves

What happens when the rational level headed girl I used to be starts to lose her mind?
Its been a long week this week. I expect you all have been looking forward to this short working week so you can relax for the Easter holidays.

My mind has been burning over time. I’m pretty emotional this week. Not over anything in particular just the usual, the next step.

I’m starting to make plans again. I’m off to Switzerland in a few weeks, that was the first plan I made.

A mother fucking holiday.

I’ve been thinking a lot too about what happens after my next scan.

If all goes well it will be work.

I can’t seem to write what I’m feeling at the moment I feel like it’s all over the place.

Work is such a simple step to get back to. Then why does it scare the living shit out of me?

Its not the thought of going back to work. Apart from this whole shit storm that’s been my story for the last 15 months I’ve always worked.

Its the whole what do I do? I feel so fucking lost. As hard as I try to stay the same person that I used to be I’m just not. It’s impossible to be that person anymore.

I had a cough this week. Well… I convinced myself I had a cough. And I convinced myself that this cough was coming from my left side. The left side that they’ve not treated. The left lung that they decided the tumours were too small to treat with radiotherapy.

How do you keep a rational and level head? I’ve forgotten.

I will forever be this person that is a hypochondriac that thinks they are dying of cancer before anything else.

I was asked a few weeks ago if I’ve ever considered not making cancer my life.

Kind insensitive right? It’s shitty comments like that that stick with me. It’s hard for it not to. Is that how people see me now? This boring cancer story. It wasn’t meant in a malicious way or for me to take so sensitively… But how can I not? This is my life now.

My friend was explaining to me her feeling of anxiousness. I’ve never really understood anxiety having never experienced it myself. I understand the workings of it. And I’ve always respected those who have to deal with it but I’ve never really experienced it for real.

I wouldn’t say I have anxiety. (Reading this you would probably say that I do) But I don’t.
I just actually understand it now. You know that lump in your throat that you get when you feel a little emotional but you don’t want to show it? And you try to swallow to get rid of it but that doesn’t work? I’ve got that but instead of my throat it’s in my chest like right under my sternum. And it’s not a little lump it’s the size of a tennis ball I would say. It’s not always there. It just crops up when I’m making plans.

What if I have to cancel them?
What if I get sick?
What if I make people upset again?
What do I do?
How do I live my life?
Do I have a headache coz I’ve not drunk enough water today or is it something else?

It goes on and on and on.

These questions just never shut up.

Its continuously going round and round in my head. All I want is for it to SHUT. THE. FUCK. UP.

Not cancerous enough

It’s been a week of mixed emotions this week. So I received my phone call from my consultant for the next plan of action and I can’t say I was best pleased with the plan.
And strangely enough I surprise myself by saying this.

So the right lung where the bigger tumor is will be treated with radiotherapy. This will begin this week and I’ll have 12 sessions. 12 sessions seem like a piece of cake after my 36 sessions last year!

And the left lung? Well they’re just going to leave it.

Apparently chemo has worked too well. I’ve been told I shouldn’t have improved so much between the scan after chemo 3 and the scan after chemo 6. They generally don’t see any difference between the 2 scans so to find it’s shrunk again means I don’t fit into the normal cancer category… Again.

So basically the left lung doesn’t show a distinctive enough tumor. Which is great! Hooray! I’ve kinda beat cancer!

But because the left side is so small they can’t really target it with radiotherapy… So now it’s too small.

They’ve decided to just leave it to see what happens.

Hence why my mixed emotions. I’ve been conditioned so much through treatment that treatment is good, treatment is important that it seems impossible for me to see this in a good way.

I feel like they’re leaving me to walk this dangerous tightrope of life and cancer. I mean the growths to the lungs occurred within 3 months then doubled in size within a month. This is a serious cancer they are dealing with. This is my life!

I trust my consultant and the work she’s done for me but I couldn’t help but cry when she told me that she’s not going to treat the left side. And never in a million years did I think I’d be crying over the thought of not having treatment!! Maybe I shouldn’t have bitched so much about chemo! It obviously worked too well!!

Double, double tinder and trouble; Fuck you burns and cynicism bubbles.

You know this one will probably be a fairly emotional one… For me, probably not you. It’s probably something you don’t really think about. And I’m not gonna lie… It’s a difficult one for me to write. I’ve debated HARD about whether I should post this… But I said from the start I would show all sides of cancer. The good, the bad and the ugly. No hiding, no editing, no lying.

So the strong, independent, feminist finds this tough to admit.

But sometimes I find this lonely.

And not in the sense that cancer is a lonely battlefield that you’re fighting by yourself. I mean it’s just me.

I have my family and friends that I’m forever grateful for but they’re not there when it’s dark. They all go home at the end of the day.

Now,  I’ve always been an independent woman and I’ve never found myself co-dependant on anyone and the thought of myself becoming like that terrifies me. I’d hate to be that girl.

But there are a lot of things I have noticed in this past year that if I was healthy, I would give a good “fuck you” to but I guess as it’s a sensitive spot, cancer and me, I feel like if I ever said anything it would look like an overreaction 🙄 because I have cancer.

Let’s look back on a year ago. Just over a year ago, I had a pretty healthy dating life. I’m not gonna go into the details because that’s unnecessary and I’m very aware there’s family that reads this.

I was still talking to some of these guys when I was first diagnosed back in January. Every single one of them I told the truth and gave them an “out”. All of them said the usual “I’m sorry”, “that’s shit”, blah blah blah… To be fair,  they all were pretty curious and it helped me,  I guess,  deal with it by talking about it. But they all said they wouldn’t just drop me. I mean what kind of guy would that make them?!

Now before you go off on one,  this doesn’t make me a whore. None of it was a relationship. It was dating. Going on dates, chatting, usual 20s dating crap.

Me,  being very cynical,  didn’t believe any of them. I mean if it was flipped would I want to be involved with all that… Probably not. I know… How superficial and arrogant of me.

And now? I don’t hear from a single one of them. Even guys who I knew were interested in me but it never went anywhere don’t talk to me anymore. And I don’t mean this in an arrogant way where I had hundreds of guys chasing me because that’s not the way,  but any interest has now completely dropped. I don’t even get a “hey, how are you going?” I’m not doing this post to be self centred saying that everything should be about me and everyone should ask me how I’m getting on with treatment or whatever,  I’m just explaining how hard it can be adjusting to my new life and knowing that this will be it… I’m not being all woe me, please pity me. It’s just highlighting how different my life is now. This is the reality of cancer.

To be fair, I don’t blame them. I mean who wants to deal with this. But what I do have a problem with is the lies. I gave you all an out. But none of you took it.

So here I say fuck you.

Here I say look at me and how far I’ve come. On my own.

I may always be on my own… And I find that hard to say. I may not. But let’s be realistic it takes a special kind of person to take cancer on and let’s be real… If I couldn’t find that guy before when I was healthy, what’s the chance now! 😂 Especially in this new superficial, narcissistic world of swiping left or right!

I know I wouldn’t want it… If I had the choice that is.

Feeling Fake

I’ve debated quite a lot about whether I should post this. I don’t like to worry people and I don’t want people to treat me differently by treading on eggshells. If it’s anything like the last few posts then I expect I’ll get a lot of messages… Or not. Haha. You may not care! 😂

But I want to be true to myself and I said when I started this that I would give the honest truth to everything. It may be hard to hear at times and it may be stuff that people don’t want to hear about but it’s my life. The good the bad and the ugly. This. Is. Me.

I feel fake.

Everything I seem to do at the minute is forced. My smiles don’t come so easily and my positive vibes are lacking.

When I knew what was going on I could deal with it. There was progress. I may have felt shit day in and day out but I knew treatment was working. I was one step closer to getting my life back.

I don’t know what’s coming. I’m lost. I’m sad. I’m feeling fake.

I’m not depressed. I think that word gets thrown about too much. I’m just sad. I’ll get over this eventually… Probably in about 2 weeks.

I found out last month that I can’t donate blood anymore. That’s just another thing that makes me sad. After having 10 units of blood back in January it means I can never donate again after the whole blood fiasco in the 80s. It’s another piece of my old life I can’t do anymore.

I feel like I’m kind of short changing you guys at the minute. This was meant to be the stories of a happy smiling cancer girl 😂 and it’s been lacking in the happy and smiling aspects of late! I promise, I’ll buck up my ideas and get back on track soon.

I’m in a funk but I’ll deal with it… Like everything else! This won’t last.

A scrambled mess of prosecco and overthinking

It’s been a weird few days. A bit of an emotional roller-coaster of ups and downs. It has been a week of cuddling babies, turning 29, popping prosecco and partying with the most awesomest of awesome friends that have helped me through the last few months… Although if you asked them they wouldn’t say that. They think they haven’t done enough or anything at all that deem them awesome but they honestly really have.

Even just a ‘hey, how are you?’ when the world around you has turned into an unstable mess can mean the world. You may read this with skepticism and think how? But there were days that I would struggle to even think about getting out of bed, let alone actually do it. So a ‘hey, how are you?’ can really go far. It gives purpose. It gives hope. It gives you a reason.

Now, I’m not gonna lie to you, there have been many times those ‘hey, how are you?’s went unanswered… Why? Well when your arse has been ripped raw from being burned from radiotherapy and you struggle to climb in and out of a car to go everyday to the place that’ll make you better, but you know in the short term will make you worse, you do get a bit wrapped up in your own self-absorbed world. Please don’t pity me or my arse rubbed raw story. Haha. It’s all better now and you would never even know. 😉 however, I may look at our pothole filled roads in a whole new light!

Now, I’m not randomly going up to strangers and cuddling babies, you don’t have to worry about my sanity quite yet. Haha. But I’m finding that I’m of that “age” now where babies, engagements and weddings are becoming a frequent occurrence. Having one of these factors of mine altered, and I say altered because it’s still possible, remember! I’ve started to question aspects of my life. Nothing is ever going to change what has happened but I think it’s healthy to look at things differently. But it’s another “why me?” 😫 kind of moment, unfortunately, because say for example, I did decide to foster or adopt, every aspect of my life will be under analysis. And that’s fine, I don’t have anything to hide, as you already can tell! But it wouldn’t have been this way if I was 16 and pregnant… Damn it!

I received a very generous message this week from a friend and her situation with cancer. I won’t go into the details because it’s not my story to tell but you just don’t realise or appreciate how many people cancer hits. I always knew that she was attacked with the nasty little bugger that is cancer before I even met her, but I can’t help but wonder if she had enough ‘hey, how are you?’s I know her story was before I even knew her but I certainly know I didn’t give enough ‘hey, how are you?’s after. Because although my cancer story will soon be behind me… It never really will be fully gone from my life. That little bugger will always be niggling at the back of my mind.

Every cancer story is personal and different. You could find you have exactly the same cancer as me but that doesn’t mean the situation is the same… Or the treatment for that matter. In my radiotherapy days, as you’re up at the hospital 5 days of the week for it, you start seeing the same people up there. And slowly, as treatment goes on and on and on, you never see them again. You think “they’ve made it!” like it’s some sort of game and that they’ve reached the top level. It’s weird seeing these people everyday at the worst moment of both of your lives, never to see each other again or to never know what happened to them…

There have not been many days where I have been caught up in my emotions and been pleading the “why me?” card but this last week has most definitely and unfortunately been one of those weeks that I have found the most trying. Damn me and my overthinking brain!

 

Some pictures of me and my awesome friends. I wish I took more pictures! Me and my prosecco filled self didn’t even think to capture this day more! 🍾