Sometimes bad shit happens

Sorry, I’ve been slacking on the blog posts of late. You’re probably wondering what’s been going on! Well, in all honestly I can say not a lot. And its good!
And I apologise too for the title of this post. It is the only title I could think of where it put my point across well. If you didn’t realise it already then my language is occasionally fruity but it’s honest.

I did manage to finally go away. I took a break to Switzerland for a few days. It’s nice to finally have a plan that sticks!

Today is a pretty important day for me. It’s scan day. I’ll have my CT scan with contrast to see what’s left… Or worst case, if there’s more. I’m not really thinking about it to be honest. It’s like Pandora’s box if I flip that lid. I’ll get round to the worry and sleepless nights on the lead up to results day. There’s a word in the cancer community that I hear a fair bit.

Scanxiety.

I fucking hate that word.

The anxiety of a scan.

It can be a range of things. Anxiety of the scan itself, the preparation of it or just the results. If you’re going through this yourself you’re guaranteed to experience scanxiety at some point. You’re a bloody tough nut if you don’t!

For me, the scan, the needles, the waiting, it’s fine. It’s a process. I can quite easily shut my emotions off for this part and just go with it. There’s nothing more I can do so I just kick back and let the medical staff do their work. I’m just another number in their day, and that’s the sad part. How many people they see each day doing pretty much the same thing.

You know, if there’s one thing I’ve learnt from all this its how to get a good game face. And I don’t mean for the treatment itself or the cancer. Some days you do have to fake it to get by but I don’t mean that.

I’m different these days. Aside from the obvious why I’m different… I mean it in ordinary scenarios in life. And I find that fucking annoying.

But people don’t realise I’m different because I still act the same, unless I talk to them about it. It’s all about my game face. I act the same but inside my world is crumbling.

You’re probably thinking that these scenarios are extreme or that maybe I should avoid putting myself in these situations. That’s probably what I would have said before this because I wouldn’t have understood. But I can’t. Sometimes they just creep up on you like “ah ah ah! Don’t get too comfortable with life! I’m just lurking round the corner to screw your life up again!”

A lot of my internal freak outs are to do with family and death. I know… Morbid.

I’ve always been rational but now I’m thinking of situations where something bad is going to happen or if its a real internal meltdown someone’s going to die.

You’re probably worried about my mental health right now. Honestly it’s fine. I talk about this to my close ones. They know about my lockdowns. They probably don’t realise how often I have to do it but they can’t hold my hand all the time. As I said… It’s a process and something I have to deal with in my new life. I don’t need a therapist as much as you may disagree with me.

It just pisses me off that I’m now thinking of shit I’ve never had to think of before. I could probably resolve this a lot quicker by going and talking to my doctor but I don’t need another pill to pop. It’s intruding my life but it’s not stopping me from living it.

It’s crazy how your mind can fuck you up at times… I actually thought as I stepped on that plane to Switzerland: this plane is going to crash. Not: finally, I’m going on holiday! I’ve never been worried of crashing planes before. That pisses me off. It tarnishes all exciting experiences for me now. I hope one day to get to a comfortable place where disaster is not the first thing I think of.

I guess my worries are because I’ve had cancer doesn’t mean that I’m immune to other bad situations occurring. Bad things happen in life and there is shit I can do to stop it.

Fucking scanxiety… Yeah that’s not all I’ve got!

A few from Switzerland πŸ‡¨πŸ‡­βœŒπŸ’œ

When rationality ups and leaves

What happens when the rational level headed girl I used to be starts to lose her mind?
Its been a long week this week. I expect you all have been looking forward to this short working week so you can relax for the Easter holidays.

My mind has been burning over time. I’m pretty emotional this week. Not over anything in particular just the usual, the next step.

I’m starting to make plans again. I’m off to Switzerland in a few weeks, that was the first plan I made.

A mother fucking holiday.

I’ve been thinking a lot too about what happens after my next scan.

If all goes well it will be work.

I can’t seem to write what I’m feeling at the moment I feel like it’s all over the place.

Work is such a simple step to get back to. Then why does it scare the living shit out of me?

Its not the thought of going back to work. Apart from this whole shit storm that’s been my story for the last 15 months I’ve always worked.

Its the whole what do I do? I feel so fucking lost. As hard as I try to stay the same person that I used to be I’m just not. It’s impossible to be that person anymore.

I had a cough this week. Well… I convinced myself I had a cough. And I convinced myself that this cough was coming from my left side. The left side that they’ve not treated. The left lung that they decided the tumours were too small to treat with radiotherapy.

How do you keep a rational and level head? I’ve forgotten.

I will forever be this person that is a hypochondriac that thinks they are dying of cancer before anything else.

I was asked a few weeks ago if I’ve ever considered not making cancer my life.

Kind insensitive right? It’s shitty comments like that that stick with me. It’s hard for it not to. Is that how people see me now? This boring cancer story. It wasn’t meant in a malicious way or for me to take so sensitively… But how can I not? This is my life now.

My friend was explaining to me her feeling of anxiousness. I’ve never really understood anxiety having never experienced it myself. I understand the workings of it. And I’ve always respected those who have to deal with it but I’ve never really experienced it for real.

I wouldn’t say I have anxiety. (Reading this you would probably say that I do) But I don’t.
I just actually understand it now. You know that lump in your throat that you get when you feel a little emotional but you don’t want to show it? And you try to swallow to get rid of it but that doesn’t work? I’ve got that but instead of my throat it’s in my chest like right under my sternum. And it’s not a little lump it’s the size of a tennis ball I would say. It’s not always there. It just crops up when I’m making plans.

What if I have to cancel them?
What if I get sick?
What if I make people upset again?
What do I do?
How do I live my life?
Do I have a headache coz I’ve not drunk enough water today or is it something else?

It goes on and on and on.

These questions just never shut up.

Its continuously going round and round in my head. All I want is for it to SHUT. THE. FUCK. UP.

When the cancer clock keeps on ticking

Cancer…
Cancer…
Cancer…
It doesn’t get better the more you say it does it. Damn.

I’m in this bloody lingering place of limbo again πŸ™„ I feel so useless. I feel forgotten.

All I’m doing is waiting until they can scan me again in a couple of months. When you’re going through treatment you feel so awful physically but you feel good (or at least I did) mentally because you know something is being done.

I’m waiting on fate to give me some luck now. It’s out of my hands. Fate has not given me much luck previously. Fate is a bitch.

My story isn’t so juicy when you’re waiting so you tend to lose a lot of interest from followers. I’m not at the start of diagnosis where it’s a shock to everyone and I’m not dying right now so there’s just no juicy gossip to pass on. I’m stagnant with my diagnosis at the minute.

I’ve taken to reading a lot of cancer stories in the newspapers lately. It’s probably because they catch you with the title “woman, 22, survives cancer against all odds” or “man survives cancer by eating lemons”. They like to draw you in with the catchy and unbelievable titles πŸ˜‚ …and man alive… Am I gullible. But to be fair once the cancer train has hit you its hard to pass over these stories.

You have to go careful when reading these stories in the media. I feel like everyday I am coming across some natural remedy that will beat cancer. Some story of some person who was on deaths door and took this magical natural remedy for a period of time and boom! They’re cleared! It’s so hard not to get wrapped up in it all and believe this magical cure can work because sometimes they give you false hope. I’m not feeling hopeless at the minute but I’m feeling realistic. I believe some of these stories are true but I’m also aware on how rare they are. I’m not opposed to trying some new found hippie dippie cure if it works I would try absolutely anything to survive this. I’m very much aware of my internal ticking clock that cancer is now dominating. Tick tock, tick tock, tick tock…

I’m not going to tell you what hippie dippie remedies I’m trying because I don’t know if it’ll work and I don’t want to give others false hope. I’m also doing it for other reasons too that aren’t just related to cancer.

My body has aged. I don’t know how old my body is now but it’s certainly not the nearly 30 year old I am. It’s probably at least doubled in age. I wake up in the mornings unable to move my hands straight away. There are pains in my knuckles. It takes me a good couple of hours to loosen up in the mornings and feel like I can start the day. My knees at the end of the day ache. Like deep down in the bone hurt. Bending to sit hurts and getting up and down off the floor now means I make those old people noises I never did before. If I’m really tired they sometimes give way and I get a bit unstable with my balance.

These hippie dippie natural treatments that you hear about will never be researched further if they do work. Drug companies can’t patent a natural formula so it’s not profitable for them. It’s all to do with politics. But I’m also aware that if it did get to a serious stage where I’ve exhausted all medical treatment options I will never be offered a clinical trial. My cancer is just too rare. Clinical trials are for the “popular” cancers.

I am doing my own thing. I do my bit of research and I choose my own path. I’m not shunning medical treatment. Please don’t interpret this into something else. I’ve finished my treatment so it will not affect any medication or treatment plan. I just feel like I’m waiting on something that’s out of my hands and I want to take back control.

If I have to go back onto treatment then I will talk to my consultant or I will stop what I am doing if I am advised to. I still have my faith in my medical team. I just feel like because I’m not dying right now I’m not important to them. Which is great! It is! I’ve come to the other side that I thought I’d never reach but I’m also in no man’s land.

Its hard being left with your own thoughts. Your mind can be so torturous sometimes.

On a happier note, I went to a wedding on the weekend. My best friend of 19 years… Yes, Emily… That is correct, 19 years! Got married! I was super excited for the weekend not only for her but for me too! When she first planned her wedding I could not give any solid answer to her RSVP because I didn’t think I’d be well enough. At the start of her engagement it was hard for me to see 7 days ahead let alone 8 months! Wow… 8 months. Look how far I’ve come! 8 months ago I had just been told my cancer had gone metastatic and I went back on an immediate chemo plan.

So with all these wobbly moments where I feel lost, forgotten and unknown I just need to remember how far I’ve come. How much stronger I am physically and mentally now.

The power of puppy cuddles and good brows

I like an easy life these days. Since losing my hair the care for my appearance has dropped a fair bit. I’m not self conscious about my looks or anything,Β  I’m just not bothered by how people perceive me. From someone who was heavily involved in the beauty industry and had a fairly structured skincare routine from the age of 12 I’ve surprised myself.
IMG_20171027_154500
This is me au naturel! Sneaking in cuddles with my new puppa Hugo 😁

I haven’t quite lost all my eyebrows and eyelashes but they’ve massively dropped out. When I’m without make up,Β  I’m fairly featureless. So without hair and pretty much no eyelashes and eyebrows,Β  I thought I’d give a few easy products a go!

Before all this cancer drama,Β  I would say I filled in my eyebrows fairly heavily… Even though I probably didn’t need to. So to find a product that makes my life so much easier without going into the dramatic side of permanent make up makes me scream with delight.

Maybelline’s tattoo brow is a gel like brow product that tints your brows and the surrounding skin.

img_20171027_145637176213242.jpg
I’ve used light brown. I would have normally gone for dark brown but having no hair, I’ve toned down the colour for a more subtle appearance

You apply the gel and leave it on for 20 minutes for an all day wear. Now the best bit that makes my simple easy life all the more better is that if you leave the product on for 2-3 hours it can last up to 3 days!! πŸ€—

BeautyPlus_20171027092227_save
The colour is harsh but this is just the guide colour! I promise!
BeautyPlus_20171027153737_save
After a couple of hours I peel it off. Go with the hair so you don’t pull any hairs out. Don’t worry it’s very gentle, it doesn’t hurt.

I find as my skin care routine is pretty shocking these days and you’re lucky if you catch me on a day that I shower, I find that the gel tattoo can last me up to 5 days.

Thankfully being a beauty therapist, getting the brow shape matching doesn’t take too much time. However if you’re new to any kind of brow product or don’t feel too confident it’s probably best to practice with a normal brow powder or pencil first. The gel is pretty forgiving in removal if it’s wet and you remove it straight away but if you leave it to set, then it will stain the skin beneath and you’ll be left with that error unless you scrub a fair bit.

BeautyPlus_20171027153844_save
YAY! The brows are back in a nice subtle shade

I tried the new fad of magnetic eyelashes too. They’re an “easier” alternative to strip lashes that use glue. With my eyelashes quite sparse and thin I thought strip lashes would preserve those that I have left as I won’t be aggravating the area like I would if I used mascara and the whole removal process with it. I’m shit with the normal glue strip lashes so the magnetic lashes sounded right up my street!

Well… That one wasn’t such a great one. They ended up making me look like a toy doll. And not in a good way. They stuck on pretty well but they were too straight and unnatural against the lash line and I looked like a twat.

So I’ll keep with my new fave product for brows but that’ll probably be as far as I’ll go.

In other news… Last last week was a pretty rough week! From having shingles, then chemo,Β  I got a cold straight on top of it all. I have to say it is the absolute WORST I have ever felt during all of this. It is the first time I can say that I actually didn’t want to get out of bed. I pride myself on the the fact that I’ve never moped about and always kept somewhat of a routine. The only reason I did actually get out if bed was because I had a doctors appointment to see how my shingles was going πŸ™„

Thankfully after some strong pills and a lot of rest and relaxation I’m almost back to normal.

I’ve had a little help in my recovery this week too…

dav
Meet my new puppa Hugo! πŸ€—

The happy pessimist

I got some good news for once this week. Chemo is working! My scan from last week has shown an excellent response. The chemo has reduced the size of the tumors and one is barely visible. With this news it will mean that I will continue with the rest of my planned chemotherapy treatments.

I should be happy, right?

And I’m pleased. I am. But I can’t exactly say I’m over the moon, bouncing from room to room, can’t stop smiling happy. And why you ask?

Because this isn’t the end.

Yes, it’s a good result. But how long for?

I told you last time, after the devastating results from my 3 month post treatment scan it’ll shit on any other happy news in the future. And it really has.

I’m pleased. I am. And I’m happy for my family and friends that they’re finally hearing something good… But it is definitely shadowed by the fact that this isn’t it. Even if it clears up after all of the chemotherapy and whatever treatment follows after, it won’t be the end.

It will most likely come back. It might not be straight away. It could be 5 months, a year, 5 years, 10 years or more but it will at some point return.

Until they figure out a way to completely eradicate it from my lymph or blood… Wherever it is travelling from, its not over.

I’m OK with this. I’d rather it wasn’t this way but I’ve accepted my fate in life. I’m still positive about my diagnosis. Don’t misconceive what I am saying. Just because the news before shat on every other bit of goodness now or in the future, I am still positive about my treatment. I feel good in myself and I won’t let that stop me from living how I want to live.

Its just… I don’t know… The big fat elephant in the room that’s staring me in the face is still there. So I’m happy but I feel like I can’t truly be 100% happy because before I know it the rug will be pulled from beneath my feet again and I’ll be back to square one. And it’ll crush me.

But worst of all, it’ll crush the people I love.

I hate that this now makes me look at the other side of life. The more pessimistic side… That’s not me. But I have no choice. I have to be realistic.

So this week I am happy. But probably not as happy as I would have been this time last year had I received good news. Because although I am happy, any big fat sunny happiness I have now gets shadowed by the dark and ugly side of cancer. And forever will be no matter how small it may become in the future years… It’ll always be there in the background waiting to pop back up and ruin everything all over again.

On another note, apparently I have shingles! πŸ™„ I’m an anomaly again as I don’t have the “normal” symptoms. Just a rash on my back, other than that I feel pretty normal… Considering.

It shouldn’t interfere with my chemo on Friday thank goodness but bloody hell… Can’t catch a break at the minute! πŸ˜‚

When you become a real life zombie

I think this one will be about how chemo makes me feel. It’s a difficult one to explain but also it might be something that not everyone feels when they have chemo. This is my reaction to the drug. And it’s difficult to explain when the effects have worn off because I try my hardest to remember how it makes me feel but at the time that’s all I feel but when I’m better I forget. Sounds crazy, right! But everything is so easily forgotten when you feel better.

So there is a thing called chemo brain. And I guess that is what I’m suffering with at the end of the day but that’s not really what I thought it would be called. Chemo brain sounds like you’re forgetful or it affects your mental ability… And I guess in a way it does. But my experience is nothing to what I imagined.

So the day of chemo my reactions are all pretty immediate. I generally get a huge dose of antihistamines, which is basically a syringe full of Pirton. This is to help my body cope with the chemo paclitaxel… You know, first time anaphylaxis. This prevents any reactions occurring but it also makes me very very drowsy. So pretty much for the day of chemo I’m in and out of sleep. It’s a great way of killing an 8 hour day but it still drags… And my poor mum still has to suffer through it along with me.

One of the first things to change with chemo is my taste. This doesn’t normally last. Just for 4-5 days. I’m not sure how I can explain it, it’s like I’ve got wax in my mouth or my mouth is all cotton wool like, I can’t taste flavours as well, and things aren’t as appealing. I struggle to eat meat at this point coz the texture of it can be very off putting.

Followed closely from the tastelessness is the nausea. This is probably a big factor to the chemo reactions. As I suffer with nausea this means that my appetite reduces. It’s tough to find what I fancy to eat and I try so hard to eat what’s good for me. I have 4/5 different types of anti-nausea pills which help combat any actual sickness but it makes my mouth even more woolly and changes tastes even more.

Chemo affects you mentally too. I go very spaced out for a few days. I find it better on these days when people don’t talk to me. It sounds so silly but I find it so hard to concentrate on texts and function on what I should be saying. It sounds so crazy, right! It’s like there’s a massive fog over my brain that prevents me from focusing properly on what I should be doing. I zone out easily. I literally become some sort of chemo zombie. I don’t just think it’s in my head though. It weirdly affects my eye sight. Not in an awful way and it only lasts for about 3/4 days after and then I’m fine I just get this ring of haze around my sight and this makes focusing difficult. It’s like my brain just gives up trying to focus on what I should be doing.

I become a ghost to any social media and friends seem to know they won’t get a lot out of me on those days.

It all sounds so awful what I have to deal with when you say it out loud but you just have to deal with it. This is my life. If I want to be better then I have to deal with these after effects.

I have to apologise in advance for this post too. I’m still very foggy headed this morning so this post has taken me longer than usual to write and I’m sorry if it drags off in weird directions or doesn’t make much sense! It’s a real life struggle for me this zombie brain thing but it’s easier to explain when you’re actually mulling yourself through it then if I write it in a few days time when it’s a distant memory.

When narcissism is replaced with blissful oblivion

I’m in a really good place right now. I’m not sure what made me turn this corner and see things differently and I can’t tell you the secret on how I did it. It’s just something I’ve noticed in myself in the last few weeks. It’s probably my I-don’t-give-a-fuck-attitude but I don’t think it’s all that.

There’s just contentment. Weird I know in the state my life is in right now. I don’t know how I can explain it… Cancer is very much still in the forefront of my mind 24/7 but I’m not letting it rule my life. I mean obviously it does, but I guess I’m less bothered about it? Oh gosh, this is hard to write… I mean I’m bothered by the status of which direction it’s taking me in my life but I’m dealing with it.

I guess there is no word that exists for how I feel. Because any positive word detracts from what is going on and I’m still very much involved with it all. Positive words make it seem OK and makes it minor but this cancer isn’t minor. It’s a huge, horrible thing going on. It’s up all in my life saying “look at me!”.
Negative words make it all sad and worse than it is. I mean it’s bad… The worst it could be, but if I let that rule my life then I wouldn’t be the person that I am.

It seems strange, but I think my turning point was when I lost my hair. There was something very liberating about it. I really couldn’t give two shits about what people think when they see me. If you knew me a couple of years ago, you would have known I wouldn’t have gone to the supermarket without even doing my make up! πŸ™ˆ I look back on that now and think how shallow?! But then I think it was a time where my biggest dilemma in life was deciding what my plans were for the weekend… Oh how nice it would be to be back there. Narcissism and all.

When I’m out and about I’m very much aware on how people look at me. And to be fair their reactions surprised me. Most people didn’t care. They didn’t do a double take. They didn’t stare. They just went about their normal business.
To be honest though, I only go out when I’m well so they may look at me like I’ve just decided to shave my head. It seems to be a popular thing at the moment.

I say most people because I have seen people stare at me. And weirdly enough it’s the older generation and they’re in no way subtle about it. They literally stop dead still, stand and stare. And they don’t even look away when I catch them doing it! πŸ˜‚ I don’t let them get away with it (that’s the best bit about having cancer, you really don’t give a shit) I’m not sure why the older generation are so obvious. Because those who know me, know subtly is lost on me so they really could get away with it if they’re discreet. I’m not sure what they’re seeing… Maybe I’ll ask next time I catch them staring. A walking time bomb… Cancer… Or just a fashion statement? I’m just not sure.

Now the weather is getting colder I’ve had to buy a hat so I blend in better with everyone else. I don’t care about blending in, but it’s freaking cold when you have no hair!! I’ve also gotta be sensible about these things. I can’t risk getting a cold for how I look for the sake of being defiantly different.

I’m playing the big fun game of waiting again. I don’t really know what’s going on until I’ve had my 3rd round of chemotherapy and they can scan me again to see what the cancer is doing. I’m not so bothered that I’m playing the waiting game this time round. Last time it was torture. The not knowing. But this time… I’m in this blissful place of oblivion. I guess you could say it’s a form of denial. But lately after every waiting game I play I seem to get bad news. So yes, maybe it’s a form of self preservation but I feel good in myself and how I feel, so this waiting game at the moment I am fine with. And I can play it a lot longer if it means I don’t have to find out the outcome. But that will never happen. I will find out my fate eventually no matter how much I mentally scream and cover my ears.

When in doubt just add hairspray!

I’m trying to keep these posts with a bit of variety coz I don’t want to be that boring cancer story. But really how interesting can you keep this topic?

So I lost all my hair. I told you it was happening but I bet you didn’t think it would all happen in one go. Haha. So I had a really good week where I was busy out visiting friends and this was the week where my head hurt. So by that weekend if I really tried I could have pulled it all out. But I wanted to keep it in for the weekend as I was out with friends and I didn’t wanna look like “that” person. So I just hairsprayed the shit out of it all. I figured if hairspray can normally keep a style in place it can keep my hair from falling out too, right? Haha. Well believe me… There was no disaster! It worked! So by the time bank holiday Monday came round I didn’t think I could push it for any longer. So I went outside and just started pulling… And pulling… And pulling. It didn’t hurt. By this point I think it was just sitting in the hair follicle. By the end of it all it looked liked I’d just brushed a big fluffy dog but unfortunately there was no dog to cuddle at the end of it πŸ˜‚

dav
πŸ‘†πŸ»Yep, all my own! No dogs involved!

I was OK about it all, I mean it took me a while to get used to looking at myself in the mirror every time I came across one and I have major tan line issues going on but I’m OK with it. This is just another factor of cancer I have to deal with. It just annoys me that I now look like the cancer victim. Before I could hide it pretty well and pretend to be normal but there’s no denying what I’m going through now. I’m still not doing the wig route. I don’t see the point. It’s obvious what they are and they’re never nicely made. And the whole head scarf look is worse! That’s just highlighting the fact of what you’re going through. So I may be a beacon of light with my pastey white head but at least I’m still being me.

I haven’t lost my eyebrows or eyelashes yet. I expect I will and I’m gutted that I probably will. Because that is the epitome of “cancer victim” and you lose all your features so you look sick no matter what… But ah well… As with everything else we’ll cross that bridge when I come to it!

img_20170829_145446.jpg
I may blend into the wall in the background but it’s not that bad πŸ˜‚

Hair today, gone tomorrow

It’s been a good week this week. I mean a really good week. This is what I was hoping for going through chemo. I’d have my bad days but I’d also have my really good days where I feel normal again.

Its funny, I look at myself in the mirror and when it’s like now, a good day, I think this doesn’t look like a face of cancer. Unless you know me and what I’m going through you wouldn’t know what I’m battling. I guess it’s a good thing because I have a respite from having cancer dominate my life. I mean on my good days it’s still there lingering in the background. It’s the first thing people ask if I haven’t seen them in a while and I still have to take my daily dose if medication that I never had to do before. But I’m not that sickly person where it’s obvious what’s going on.

Nobody sees me on my bad days. And I mean nobody. The only people who have seen how horrendous my bad days are are my mum, dad and sister. You might think it strange because don’t get me wrong, Β I have a huge support network that would be there for me at a drop of a hat if I asked them to sit with me, Β but I just couldn’t do that. I’m not sure if it’s to protect them or me. There’s a sort of vulnerability being that exposed to someone. They’ll be seeing me at my absolute worst. Maybe I’m being completely selfish by doing this but I just don’t think I could handle it if they treated me differently. I don’t think my absolute closest people would intentionally do that but I don’t want to be treated like I’m fragile. And I don’t want them to carry around that burden of seeing me like that. It’s tough. It’s not pretty. And when it’s bad it’s bad but on the upside when it’s good it’s really good.

I’ve had a lot of conversations recently on the next stages of my treatment and how I’ll be going about it. I think I’ve got a better perspective of it all this time round. Last time I was in pain and I just wanted treatment to get started. I couldn’t tell you what I was thinking or what I was going through coz I can’t remember. I was taking a lot of pain meds and slept 80% of the time.

But this time, I’m aware of quite a lot. Like for example, my head hurts. And I don’t mean I have headaches but I can actually feel that my hair is going to fall out. It’s strange I didn’t know that you could feel it. I’ve never heard any stories of this before so am I the only one that can feel it? Or is it just not talked about? I didn’t feel it happening last time but that could be because I was in pain last time so did the pain of the cancer numb out the pain in my head? The only way I can explain it is it’s a bit like when you have a really bad cold where it’s bordering on flu and your hair hurts. To move it, to brush it, to touch it. Or maybe if you have a really tight ponytail and you take it down at the end of a day and you get that relief but it’s a little sore. It’s kinda like that. I can’t help but imagine these little bugs under my skin munching away on my hair follicles. Haha. I knew what was happening but it’s only on my head I can feel it. I can’t feel it on my arms or legs where other hair is. So maybe my head is just super sensitive at the minute. You might just think I’m being paranoid and a little sensitive to the fact that I know I’m going to lose my hair. I’m not. I can pull my hair out. It’s not normal to tug your hair and be able to see 10+ strands of hair in your hand. Go on, give it a go. I bet you won’t pull any out, maybe just 1 but not a lot. I got mum to clipper my hair the other week when I finished chemo. I didn’t see the point in the 80s bouffant if it was all gonna drop out. I don’t mind it clippered. I’ve been told I can pull it off. Haha.

dav

Little things have become a little uncomfortable to me now that my head is so sore. Showering my hair takes a lot of courage to do. Just the shampooing motion through my hair hurts. It becomes a little less sensitive after about 5 minutes under the water but it doesn’t completely go away. Even pulling on a jumper over my head hurts. That was a discovery I found out this morning when I got dressed. πŸ™„ it’s even worse when I forget and I go and scratch an itch!

But other than the head, Β things are all really good! I’m out seeing a lot of friends this week. Gotta make the most of it whilst I can!! I bought a skateboard too! πŸ˜‚ maybe I’m being a bit ambitious with that one but I thought it was a good idea! It’s giving me something to do and I can get about on my bad days. Because when it is a bad day I can’t walk very far so I figured on a skateboard I can go further! I don’t think my mum and dad think it’s a very smart idea but hey, it’s getting me out so they’re not gonna say anymore. In time, I guess we will see! Haha